Edwards Syndrome - Cerys Watts
Edwards Syndrome also known as trisomy 18, is a rare genetic chromosomal disorder which occurs when a child is born with three copies of chromosome 18, rather than the usual two. It is the second most common autosomal trisomy, after Down syndrome, that carries to term.
Edwards syndrome occurs in around one in 6,000 live births and around 80 percent of those affected are female. Sadly the majority of fetuses with the syndrome die before birth. The syndrome has a very low rate of survival, resulting from heart abnormalities, kidney malformations, and other internal organ disorders. It affects people from all cultural backgrounds and becomes more likely with increasing maternal age.
Cerys Watts was born with Edwards Syndrome on 19th January 2012. The condition went undetected throughout her Mum, Caroline's pregnancy and came as a huge shock. Cerys sadly only lived for 4 months, but Caroline wanted to share their story, in the hope that other parents who might be confronted with this disorder, can see that despite Cerys" short life, she was loved and happy. A true quality of life can be achieved, no matter what you get told. Caroline hopes that the website will provide you with more understanding about this disorder, a link to friends and support (please know that you are never alone), but most of all faith and hope to enable you to continue on your own journeys